Our goal is clear; we want to give people with asthma a more effective role in their own treatment – and by doing so, put them back in charge of their lives.
This is why we take our inspiration from the everyday experiences of people with asthma. And the more we understand the reality of living with asthma, whether it is mild, moderate or severe, the easier it becomes to find those pivotal points where a pragmatic change – or an innovative new solution – can support people with asthma and their treating health professionals in tackling asthma.
At the age of 11, Amalia was struggling with every aspect of her life. She was anxious, socially withdrawn, and suffering at school.
Amalia was diagnosed with asthma at the age of 8 and according to her mother Michaeli, it was never really under control. Michaeli called the free 1800 ASTHMA Helpline seeking support for her 11-year-old daughter, Amalia.
Michaeli, was overwhelmed by the effect asthma was having on her loved one. Amalia’s asthma was so severe, it came to affect every aspect of her life. Over a 3-year period, she was hospitalised 14 times ranging from overnight to a 5-night stay on one occasion.
The debilitating effect of asthma
Many people think of asthma as simply ‘difficulty breathing’ but the impact it can have on the quality of life is often immense. In Amalia’s case, it affected her physically, mentally, socially, and emotionally.
In one year, Amalia missed 6 months of school and began to feel very isolated. It seemed to Amalia her whole world was falling apart. She experienced anxiety, became socially withdrawn and struggled with schoolwork.
According to Michaeli, the sense of helplessness was overwhelming: “My daughter couldn’t breathe and it seemed as though there was simply nothing I could do!” Parents of children with poorly controlled asthma often feel powerless.
Helping you take control
When Michaeli called the 1800 ASTHMA Helpline she received personalised support focusing upon a holistic approach to her daughter’s care. Our health professionals helped her to understand the factors that lead to good asthma management.
Michaeli says the result has been life-changing. Amalia is now embracing life as a vibrant self-confident young teenager. According to Michaeli: “Amalia has come full circle; rather than spending every day worrying about her, I am now watching her grow and develop. I am so thankful to everybody at Asthma SA for their support.”
The 1800 ASTHMA Helpline is a free service.
To find out more please visit: www.asthmaaustralia.org.au/about_1800_Asthma_Helpline
We want to support people with asthma in their daily battle against the condition by making available access to information and support; funding world leading research and making new opportunities possible. We want to give all Australians with asthma the best chance of reaching their personal goals, whatever those goals may be.
Our work must reflect the everyday experiences of people with asthma and their treating health professionals. We believe the search for progress begins and ends in the intersection between the patient, the family, their community and their health professionals. We have achieved a lot in the last 50 years but we will not stop till a cure for asthma is found and the community is free from burden of the disease.
For asthma assistance call 1800 ASTHMA Helpline (1800 278 462) or visit www.asthmaaustralia.org.au
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